Thursday, February 21, 2013

On the list!

As of Monday, Theo is on the kidney transplant waiting list.  Wooohoooo!!  He is listed as inactive, which means that we will not be receiving a call in the middle of the night saying that a kidney has been found for him.  Instead, he will just accrue time on the list while all of his potential living donors are tested.  In the event that we don't find a good living donor match, he can be activated on the list at anytime.  Still, getting to this point feels like a huge milestone for us.

Exactly one year ago, Nick and I spent the night in the hospital to prove to the discharge team that we were comfortable and capable of performing all of Theo's medical duties.  The next day, we were able to bring Theo home for the first time.  Looking back, our time in the NICU flew by.  Yet at the time, it felt like it was never ending.   (And now I think about how long ago it was that we celebrated Theo's first birthday, and it feels like that was ages ago!  I think the lesson learned is this: Time is very precious, and it will pass quickly.  Take advantage.)  Never did we imagine that one year after discharge Theo would be approved for transplant.