Exactly one year ago, Nick and I spent the night in the hospital to prove to the discharge team that we were comfortable and capable of performing all of Theo's medical duties. The next day, we were able to bring Theo home for the first time. Looking back, our time in the NICU flew by. Yet at the time, it felt like it was never ending. (And now I think about how long ago it was that we celebrated Theo's first birthday, and it feels like that was ages ago! I think the lesson learned is this: Time is very precious, and it will pass quickly. Take advantage.) Never did we imagine that one year after discharge Theo would be approved for transplant.
|Cool new custom braces!|
Theo is such a gem right now. His personality is HUGE. He laughs all the time. He is "furniture cruising" with great speed. He gets into EVERYTHING. He loves to dance, sing, and drum (especially on our mixing bowls). When he is tired, you'll know it. He has even started saying "Night Night" when he is ready to be plugged in. Seriously.
He's also started growing again. I have a feeling that if his current weight gain keeps up, he'll climb above the 5th percentile at our next clinic visit. We're still working on getting him to eat by mouth, as opposed to feeding everything through his g-tube, but we are encouraged by the fact that eating typically improves pretty dramatically post-transplant. (See, so much to look forward to!)
Ok, one funny picture to share (and please don't think that I am cruel.) If you've never taken your child for a chest x-ray, then you won't be familiar with this contraption. Theo was in it for about 5 minutes. For the first 4 minutes, he licked the plastic and smiled. (They assured me it was clean, but said that they wished he would cry because they could get a better x-ray.) After the x-rays were taken, Nick pulled out the camera. Theo decided to turn on the water works so that everyone would feel sorry for him. Don't buy it. Such a stinker. We love him!!