Life continues to be wonderful for our little family. But, the last few weeks have been a reminder for me that we are going to have some setbacks along the way. I think that is par for the course.
|Putting on a brave face before eating|
In addition to the eating challenges, we (or maybe just I) had our first small "scare" this weekend. We had Theo out and about early yesterday for a photo session (an incredibly generous gift from one of our friends and a photographer), and then went out to celebrate Nick's 30th birthday (so fun!). It was clear to me that Theo was not himself; he was not smiling, he was really fussy, and he threw up several times. After a couple of hours, I decided that I needed to take him home. He screamed and cried the entire way home, and when I finally got him inside, he was so hot, white, limp, and had sunken eyes. I took his temperature, without him even flinching, and he had a 100.4 degree fever. We're under strict instructions to call the nephrologists anytime he has a 100.5 temperature, so I went ahead and called. We ended up taking him into the hospital to check his fluid to make sure he does not have peritonitis. Fortunately, all signs point to Theo having a viral illness, which is a relief. I admit that I probably overreacted by being freaked out, but things have been so good since Theo came home that I think the first minor setback reminded me of some of the scares we had in the hospital.
|Hanging out with my friend Baxter the bear|
Developmentally, Theo is getting stronger each week. We continue to work on his arm strength and balance, and he is so close to rolling over.
|Snuggling together in the park|
|Theo's cousins, George and Anna!|
A couple of days after we get home, Theo will go in for his next surgery. (Surgery is scheduled for Friday morning, May 4th.) We will likely spend a couple of days in the hospital, because Theo will need to stop dialysis for a couple of days and the nephrologists want to be able to closely monitor him.
I probably won't post anything until after surgery, so I hope you all have a wonderful couple of weeks. I've said it several times, but Nick and I feel so fortunate to have such wonderful friends in our lives. Thank you for keeping us in your prayers. We believe that Theo is a little miracle, and know that God is answering prayers.