Friday, July 5, 2013

July 5th update

I hope you all had a fabulous 4th of July.  4th of July is one of my favorite (if not my favorite) holidays.  Our day consisted of enjoying a breakfast of waffles with strawberries, blueberries, and bananas before taking part in the neighborhood parade, where Theo practiced his walking while holding onto just one of our hands.  To end the day, we hung out on the rooftop of our apartment building before calling it a night ahead of the fireworks.  A lot of family time, a lot of smiles, a lot of love for our country… hard to beat.

Theo is doing really well.  He’s a ham.  And he thinks everything we do is hilarious.  (Nick’s ego is enjoying that!)  We sometimes hear him laughing in his crib.  We don’t know what he is laughing at, but it’s impossible for us not to laugh too when we hear his giggles coming over the monitor.  Even at 5 am.

He’s had no medical setbacks recently, which is wonderful.  His kidney function is still acceptable, with some signs of very slow improvement.  His creatinine came down to 0.56 on Wednesday (yay!) but moved a little higher into the mid-0.6 range again today.  Still, he’s dialysis-free, full of energy, developing well and growing.  We’re very pleased.

We hope that he’ll move soon from 3x per week labs and clinics to 2x per week, which would make our life a bit easier.  It seems like we finally have settled back into a good routine and Theo is stable, so we feel comfortable having a nanny/sitter come in and spend the day with him so Nick can get work done throughout the day.  We now have a couple of awesome girls watching Theo a few days a week. 

All in all, life is wonderful.  It’s been amazing to see the transformation that Theo has gone through in the last couple of months.  Nick and I often turn to each other and say, “Can you believe this is the same kid?” We’ve been able to experience God’s grace, peace and goodness first hand, and it’s nothing short of incredible. 

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