Theo's lungs have healed remarkably well. He no longer has any help breathing. The doctors and nurses have all commented on how remarkable his lung development has been to this point. (And trust me, Theo likes to show off his powerful lungs!)
|Superheros sometimes cry!|
One of the hardest parts of all of this is that Theo seems totally healthy, and acts just like any newborn. He cries when he is hungry, cold, and wet. He is alert and follows us closely with his eyes. He loves to be wrapped up tight and cuddled. If it weren't for the kidney issues, he would be home with us right now.
|Looking pretty cute in his car outfit and hat|
But since there are kidney issues, we are so thankful that Theo is being treated so well by the nurses and doctors. We pray that Theo will not run into any complications as he starts dialysis. (The most common complications include infection, leakage of the catheter, and the development of a fatty, fibrous content that clogs the catheter inside his abdomen.) Dialysis will make it more difficult for Theo to eat as well, as the increased pressure inside his abdomen will make him feel full. So, we are praying that his appetite grows despite the extra pressure. (Late last night they had to put a feeding tube back into his nose because he was not taking the bottle very well.)
In rare circumstances, babies start dialysis and then respond so well that they can go off at some point. Based on what we know of Theo's kidneys, this would be a highly unlikely (but very welcome!) development. (Theo's kidneys are much smaller than in a baby with normal kidney function, and they have cysts and reflux.) So, he will likely remain on dialysis until transplant becomes possible.
Up to this point, I had hoped that Theo's lung progress would carry over into his kidneys, but that does not seem to be the case. Theo will likely be in the NICU for several months until he reaches the point where Nick and I can do dialysis at home. I was prepared for the fact that he may have to be there for several months, but actually hearing it from the doctor was very difficult for me. Nick and I so badly want to bring him home where we can cuddle with him, love him, and protect him. We take some consolation in the fact that he is in great hands, and that he is getting plenty of love from the nurses. He is one seriously cute baby, and he is already making the nurses swoon.
|Grandma and Theo.|
|Aunt Car and little Theo|
|Uncle Justin and Theo|
|Cool Aunt Whit and Theo|
|Grandpa and Theo|
Despite the ups and downs of NICU life, Nick and I feel so lucky to be entrusted with Theo. Although I'd love to have him with me now, I know that I would not change a single thing about him. He is precious, feisty, and perfect to me. We feel so blessed to have him in our lives, and look forward to seeing what God is going to do in his life.
|Aunt Hil and Theo|
|Celebrating after Theo's two successful surgeries on Friday|