|Theo loves the mobile his nurse tracked down for him|
Monday was a different story. Theo went from being on "auto-pilot" for the nurses and doctors to being time intensive. All warning signs pointed to infection; first, his dialysate (dialysis fluid) was cloudy after he was drained, and then he refused to take any of his bottle. Good thing he has a really incredible nurse who caught the changes right away. When he wouldn't eat any of his bottle, she decided to check his belly to see if it was sensitive, and noticed that he had a hernia in his belly button. He was also very sensitive to her touching his stomach. So, she escalated things right away to the neonatologist, and the surgery team and nephrologist were called right away to check out Theo's belly.
What does this all mean? First, it will slow down Theo's homecoming. More importantly, every instance of peritonitis causes the peritoneal cavity to be compromised. (For context, peritonitis occurs on average about 1 time per year for PD patients.) The peritoneal cavity allows for a "closed system" for the dialysis. If the cavity no longer operates as a closed system because of infections, peritoneal dialysis (aka PD) will not work. Right now, PD is keeping Theo alive. We need PD to work until he is big enough for transplant, which usually occurs around 18-24 months of age.
|One Tuff Cookie|