cut Theo's hair...
welcomed Grandma into town for a couple of nights, went on walks, and just loved being a family.
|Team Super Theo!|
Away from the weekend, things have been a little bit crazy.
- We are still waiting for Dubya to wake up. Theo went in for dialysis on Monday, and his labs were slightly encouraging. We pray for continued (and significant) progress. He has labs again tomorrow morning.
- We are doing our best to control Theo's withdrawal symptoms. Withdrawal is a tough thing to watch; we are taking the wean more slowly than expected in order to minimize his pain, tremors, and fevers.
- Yesterday, Theo's GJ-tube came out. If it were just a g-tube, we could replace it ourselves. But, the GJ-tube has to be placed by a radiologist (since a portion extends into his small intestine), so we spent several hours yesterday in the Emergency room before Theo was admitted back to the hospital ("homespital") for the night. ("Worst night ever," in Nick's words. The withdrawal medications were all late, which left us with a possessed child.) Theo's GJ-tube was replaced this morning, and we were home by noon. Unfortunately, we think the tube may have an issue, so may have to take him back in tomorrow for it to be examined.
|Furniture cruising with Dad|
Now, we are eager for a stretch of great progress (without any more complications) on the medical front. The last couple of days have been a bit frustrating. Theo is sick of the hospital, and we hope that he can avoid spending much more time there.
As always, THANK YOU for your prayers. Have a wonderful day!